Terms and Conditions

The information contained in this website is for general information purposes only. It is not intended to provide medical, legal, or any other form of professional advice. It is your responsibility to seek the advice of a qualified professional, as needed, to evaluate any information on the website.  

While the Rare Kidney Disease Foundation (hereafter referred to as “Organization” or “RareKidney.org”) endeavors to keep the information up to date and correct, RKDF makes no representations or warranties of any kind, express or implied, about the completeness or suitability with respect to the website or the information, services, or related graphics contained on the website for any purpose. Any reliance you place on such information is therefore strictly at your own risk.

Through this website you are able to link to other websites which are not under the control of RareKidney.org. We have no control over the nature, content and availability of those sites. The inclusion of any links does not necessarily imply a recommendation or endorse the views expressed within them.

Every effort is made to keep the website up and running smoothly. However, RareKidney.org takes no responsibility for, and will not be liable for, the website being temporarily unavailable due to technical issues beyond our control.

If you have questions or concerns regarding this Web site’s terms and conditions, contact the Organization at RareKidney.org/contact-us/. 

As our Organization is headquartered in the United States, we adhere most closely with applicable federal and state laws. We do, however, value our non-US users. The Organization has implemented policies to adhere to the European Union’s General Data Protection Regulation (“GDPR”) which includes strict data protection principles that organizations must follow in order to protect the personal information they collect about their clients or people who visit their websites. While many rules and actions may be the same in the US and EU, there may be specific instances of policy differences. If you are concerned about how your personal information is being collected in connection with GDPR, please use this contact information and reach out to the Organization at RareKidney.org/contact-us/.